Good news!

This will be brief, because we had an exhausting day, but I wanted to share a quick update.

We had a big ultrasound this morning & another fetal echocardiogram. The results are what we were hoping for: 1. There are no obvious problems with our little love based on the ultrasound besides the cardiac problems we already know about and 2. There were no changes to her heart - no leaky valves and the right side of her heart is doing its job well.

The radiologist frightened me a little bit because he came in and spent a few minutes focusing on the baby’s brain because there is a slight difference in the size of her ventricles.  After some careful scanning, he said there was detectable reason for it (bleeding, etc), so it was most likely due to the baby’s position.  Both ventricles were normal in size, so this is most likely not a cause for any concern.

We will still will not know for certain that there are no other anomalies until after birth, but it is comforting to know that there is nothing else obviously wrong.  Baby is currently 1lbs, 8oz, which is right where she should be for her gestational age. So, praise God for a good report on baby!! : )

My report was pretty good, too. The OB we saw today advised that we are candidates to deliver at CHOP.  My blood pressure was great at my appointment & Juliana is measuring where she should be.

I did ask about the possible recurrence of preeclampsia & the fetal heart specialist advised that there have been successful surgical outcomes for babies weighing over 2kg. If she is smaller than that, she may need an extra procedure involving catheterization to keep the ductus arteriosus open while she grows strong enough for the first procedure. The bottom line is that the more time she has to grow in utero, the better. Hopefully this is extra information that we won’t need!

We will have to go back to CHOP at 28 weeks, then 32 weeks, and then begin appointments every two weeks.

We just learned today that the doctors would like us to relocate the family to Philly at 36 weeks (late October). They will not induce labor until after 39 weeks, but they want us in town in case labor begins on its own.  This is a struggle for us because I was hoping to work until delivery time comes to maximize my time at home with the baby.

Because I had that sacral injury in February, I am only eligible for ten weeks of FLMA, so I will only be able to take seven weeks after the baby is born before LVHN can post my job. Juliana will be in the hospital 3-4 weeks postpartum, so we she will only be home for a few weeks before I have to go back to work. 

This also means that the vacation and sick time that I’ve saved up will only get us through 2.5 weeks in the postpartum period. I believe we can collect disability for a few weeks after that, but this period will be a financial strain on our family.

Lastly, after some consideration, we have decided not to take part in the progesterone study. I will just leave it at that.

We are thankful for an overall good report.
Prayer requests remain mostly the same:
1. No deterioration of Juliana’s heart / no leaky heart valves
2. Full term pregnancy with no other complications
3. Wisdom for the treatment team
4. Plump baby : )
5. Understanding from my job / financial ability to take off needed time to spend with Juliana

Thanks for all of your prayers and support, as always.  I am physically and emotionally exhausted & have been requiring extra down time to process & cope. Please don’t take this need for space as anything other than that - I am grateful for all of you.

Posted by Kim on 6 replies


01. Aug 5, 2015 at 07:45am by Katie:

Hey Kim!
First I want to say I’m so sorry to hear of your complications and struggles right now. I can’t even imagine what you must be feeling. I have been praying for you and your family and will continue to do so until that beautiful baby girl is healthy and home. I have been keeping up with your updates and I wanted to pass some information along, as I too ran into fmla issues with my pregnancy complication. I was hospitalized 5 weeks prior to delivering which left me with 7 weeks fmla to use with the baby. Fortunately, and I don’t think most employees know about this, but Lvh has "personal leave."  Maybe you are already aware but I wanted to share just to make sure. You can apply for up to 60 days of leave. It’s all unpaid but if you can find pto donations you can use that. You fill out an application and submit it to your director and they approve it at their discretion.  Once your director approves it, it gets sent to employee health and they review your reasoning to make sure it’s not something that would qualify under disability or fmla, which in your case it wouldn’t. I know it’s so tough financially to take that much time unpaid but if you and your family can figure something out then you could have the extra time with your baby girl. Let me know if you have any questions and if you need anything, please don’t hesitate to ask. We will continue our prayers for you and that little one. I hope this info, if you weren’t already aware, can offer a little hope and peace of mind during this difficult time for you and your family. Sending our love...Katie, Kristin, and Grayson.

02. Aug 5, 2015 at 07:54am by Katie Leayman:

And I forgot to mention...they can’t post your job! I took 15 weeks total from the time I was hospitalized until I go back at the end of August and there’s no chance of them posting it. I’m almost positive they can’t post it before 16 weeks of leave. And it might even be longer than 16 weeks. It’s also really your directors decision so if you have a good working relationship with them, which im sure you do, I wouldn’t worry about that aspect. You have enough on your plate! You know how great Paul is and if he had any question of needing to post it due to critical needs or something, he would have told me before he did it anyway. Just have a talk with your director to see where they stand and maybe that could also offer some peace of mind. Hope some of this info helps!

03. Aug 5, 2015 at 08:59am by Kim:

Hi Katie!! This is amazingly helpful - I was unaware of all of that. Thank you SO much. Gavin is in crazy mode, so I will have to send a bigger response later, but I wanted to say how grateful we are for the information & for your thoughts & prayers. I hope your beautiful family is doing well!!

04. Aug 5, 2015 at 12:28pm by Grannie:

Thank goodness for your friend Katie and her input of information.  You and Anthony have a wonderful network of friends and family to lean on.  Please do!!  I am prayerfully thankful for all this good news of baby Juliana’s condition and wellness in utero!  God is answering prayers!  Take good care of yourself Kim by ’laying low’ with resting and eating well.  We will have many days to visit when you have descended this mountain and have your healthy, beautiful daughter safely at home.  Xoxo

05. Aug 5, 2015 at 05:37pm by Jean Park:

Many continued prayers Kim.  When it is time I acn donate some PTO. I want you to be able Rob stay home as long as possible.  Love always, Jean

06. Sep 1, 2015 at 11:18pm by Kim:

Jean, I can’t thank you enough. If there is ever an opportunity to reciprocate, I would love to. Miss you & hope to see you soon. Hugs!!

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